Public involvement in research - in a meaningful and ethical way

Involving patient or representatives for the public in research leads to improvements in both the research process and the results. However, knowing how to work with involvement is not always easy. In this project, we investigate how public involvement in research can be evaluated, to ascertain that it is conducted in a meaningful and ethical way.

In CHAP, we work with public involvement in several of our research projects, mainly with children and families. The involvement activities differ between project, but often include that children or parents are included in the project team, that we collaborate around data collection or write articles together.

This project focuses specifically on public involvement, focusing on involvement with forced migrants. We are specifically interested in the perspective of those involved in research. We are also interested in exploring group dynamics in a meeting where experts with different kinds of knowledge – experience-based, professional, academic – meet. We observe these meetings, using an observation protocol, developed for assessing involvement in research meetings. Finally, we investigate the ethical aspects of involvement, aiming to create an ethical framework for involvement in research.

Project team

Elin Inge, PhD student
Georgina Warner, Associate professor


Reach out to Elin Inge with questions regarding this study.

Last modified: 2023-10-09